I had to get Bradley early from school because he had a rash and his new classroom staff kind of panicked. So I called his doctor to ask about the injections he got yesterday and potential side effects. He’s had them before with no reactions so I really didn’t think that was it, but while I waited for the doc to call me back I headed over to school and picked him up. Based on experience and then talking with his doctor, we know this is the result of his body reacting to the acid in his stomach working through his system and attacking him through a bowel movement. The worst ones can cause this reaction in him because his system is so sensitive and fragile. Our best recourse was for me to bathe him, keep his skin out in the air for as long possible, put Aquaphor on the rash to provide a protective barrier, and then stop his antibiotic. There are times he just can’t handle the antibiotics. I guess this is just one of those times. Considering his body recovered from the blisters so well I was happy to stop the antibiotic before it can really attack his skin. Now he just needs to heal up the rash.
We think his g-tube might be too small as well. He is showing a lot of guarding behaviors regarding it, which leaves me to think positive that the stem is too short and the balloon is putting pressure against the inside of his stomach. It was loose this morning, which is unusual because I just changed it out to weeks ago. So it was still relatively clear and Bradley was able to squirm it right out of its hole, which was a surprise to me - he hasn’t been able to do that before. I actually had to call Madison to come help me put it back in because he was fighting it. Two weeks ago, I popped the broken balloon button out and his new one in and he never noticed...today he noticed. Hopefully, his GI and I will be talking tomorrow.
As for the girls, they are starting to feel better. Finally! Madison still has a large ulcer in her throat, but she’s either used to it, or it just doesn’t hurt as much. Sydney still has a bit of a sore throat, but she still has ulcers in her throat too, just deeper in apparently. But they have better color and their spirits are in a better place, so we know that they are definitely on the mend.
Their school had their first band concert tonight, we are ecstatic that they were both healthy enough to go to the concert, that they each played was a bonus, Madison was able to play all her solo parts and Sydney even managed to play some of hers too, icing in the cake. It’s a new band director, so he’s going to take some getting used too for sure, but he’s excited and the kids like him, so the rest of us will just get there when we do. We’re almost to the end of the first trimester for school, which means the dance teacher will be back in trimester two and Madison will start dancing again, and I always look forward to that! The next band concert will be sometime around Christmas, so that’ll be fun to watch; it would be even better if my kids were healthy leading up to it.
I just can’t believe we are so close to the Holidays already. I do this challenge every year, and no sooner do we hit Halloween and end the Challenge, but the Holidays come in fast for us. I always am trying to stay ahead and make each year a little more festive early to get Bradley to understand the Season, but seems like there is always something that surprises us and slows everything down. Then before we realize it the holidays are over and the new year has begun. Next year will be busier than this year, which is a little daunting. Our Junior is getting ready for her Senior year, College, and for her - Volleyball becomes more competitive at this age and we will be going all over the place. The Freshman will be wrapping up her first year of High School, getting into the groove for her Sophomore year, and her age group will be a little more competitive. The good news is that whereever she goes, her sister will already be there so it should make the traveling a little easier. Eric and I will have to do even more divide and conquer this year, which sucks because one of us misses out on watching one of them play. But sometimes, the bonding that happens is just as important. So hopefully, it will be a good year. Good teams would be a nice bonus too! But time will tell on that.
For now, time to figure out this Halloween thing tomorrow! Have a great night all.
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