Day 18 - Back on the Tablet
Yes, my sweet friends, we're on the move again so I'm tapping away on the tablet here. We have a laptop, and I could have dragged the laptop along too, but it's a whole lot heavier than the tablet. For all concerned I decided to write the blog while in traffic and spell check later, around ten or eleven when we finally hit San Diego. We can only hope we won't be completely frazzled but, if you've ever driven in California at all you know that peace and common sense do not prevail on the roadways. Through the lunatic GPS we named Lola in honor of famous Lola from the movie "RV" - and sometimes it amazes me that we ever get where we plan too.
You'd think that our life of constant change would make us super flexible, but that's just not quite us, but who truly loves traffic anyway? We try to listen to Lola but I swear she finds traffic for us as if she just wants someone to talk too. Now that all of Bradley's medical is up by us, we don't use her as much, maybe she's lonely and a little bit mad at us. As she sometimes like to cruise us through parts of town I've never been through nor have I ever wanted to cruise through, I kind of lean towards mad. Either way, we're headed to San Diego for Bradley to have a MRI on his brain. May of 2011 they found a pineal cyst sitting smack dab in the middle of his brain, it sits in a place where no one wants to venture. And here's the deal - if it doesn't grow or change its behavior, it can stay there. Way too hard to operate to remove. I hate when they tell us that because then if the unthinkable happens I'm so freaked out I can't think straight. Get past the MRI, get past the appointment with the Neurosurgeon and then get on with some semblance of a mundane and simple life...that's as good a set of goals as any.
But for now, just hoping to have successful sedation, easy wake up and no surprises. But all is not completely crappy as we are excited for Bradley's 3rd Buddy Walk. We think that he might even walk most of this year's all by himself. Last year he held my hands and took a few steps, this year he might just run the whole mile with the rest of us keeping up, or trying to keep up anyway. We think we have enough people to make a perimeter around him in order to keep him contained. We have the greatest team ever, Bradley's Buddy Brigade is ready to roll out and support our little guy and all the other kids and adults out there that have Down sydrome. And who knows, perhaps in our spare time we'll get the wheels turning and start our own Buddy Walk in Ventura here soon. We'd love to have one closer to home, but we also just really love the group we have in San Diego and we're greedy, if we can have that in two cities...yeah you bet we want that too! But for now, we're just really excited to see our Team, to watch our son take a walk, and fall in love with Balboa Park in San Diego all over again!
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