Wednesday, October 26, 2022

Have Toy will Travel - even to UCLA

 October 26, 2022

Medical Wednesday! Bradley and I took a ride to UCLA for the eye doctor today. We were just there about a month ago and while we there, we learned that Bradley’s original eye doctor who left UCLA in 2018 - was back. Since Bradley’s eyes are a little bit off, we were very happy to return to his doctor. So what’s going on? Bradley has nystagmus and strabismus. His eyes move a lot. In order to calm them, he will turn his head and look back to the side, and then sometimes he’ll also close an eye to be able to focus. 

Because he’s not the most stable walker overall, we do want to try to help him as much as possible so we know that if fixing his eyes will help with walking and stability and better balance…we are willing to try. And as terrifying as every surgery for Bradley is, we know that this is a very easy surgery in terms of time in surgery, time in recovery and then recovery itself is so fast… or it has been. After his original surgery Bradley was jumping off the couch onto pillows because he could actually see them. It was a truly exciting day. 

Regardless, today we decided it would be best to move forward and sometime in the next few days we’ll hear from the scheduler and choose his date. Considering he has a sedated, overnight EEG next Thursday, I will push this next one as far as I can, hopefully closer to his Winter Break. 

I’m just wondering if Bradley is going to bring his new favorite toy… hmmmm…. 

On Friday, Madison stopped by the pumpkin patch that they had on her college campus and picked up a free pumpkin. She brought it out of her car on Monday evening and left it on the kitchen table. Tuesday after school, Bradley found the pumpkin. He has carried it around with him off and on the last two days. Tuesday night, he didn’t want to put his pumpkin down. But kind of like his baseball, he held onto his pumpkin for a good twenty-five minutes before he rolled it onto the floor. So then today, I tell Bradley it’s time to leave for UCLA, so Bradley grabs two things: his shoes (which he hands to me) and grabs his pumpkin. I thought about it for about a second, then ushered him out the door with his movie and his pumpkin. 

Although I was certain that I would be taking a pumpkin up side the head at some point on the drive, Bradley chose to let it roll from his lap onto the floor of my van. Luckily, the pumpkin was still intact. I refused to let him take the Great Pumpkin into the eye doctor, so it waited for us in the car. Fast forward, after I strapped Bradley into his seat, he made a move for that pumpkin. Again…. Images of the Great Pumpkin taking flight, I convinced Bradley that his pumpkin would be happiest in its own seatbelt, so the Great Pumpkin had a safe ride home and so did mom! 

The pumpkin is still a high value preferred “toy” for now. How long do pumpkins stay good before they start dying, getting smelly and moldy? Surely at the first sign of decay he won’t be as interested anymore right? Yeah, while he’s at school tomorrow I’ll be at Michael’s and HomeGoods or something … surely someone has a fake pumpkin that is real enough to replace a real - gonna go bad - pumpkin. Anyway, here are a couple pics of Bradley with his current favorite toy. 😊🎃



And because he can’t go the the eye doctor at UCLA and not take a nap, he did that too. 😉


31for21 Blog Challenge Down Syndrome Awareness and Acceptance.


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